The International Lipoedema Association

The International Lipoedema Association (ILA) was founded in 2021 by 60 renowned Healthcare Professionals from 22 countries worldwide to create the best possible treatment for our lipoedema patients by collaborating in an international, diverse, inclusive, and multidisciplinary team approach which is based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes.

The International Lipoedema Consensus is currently supported by high-ranking experts from 22 countries worldwide

Strategy and Vision

The International Lipoedema Association (ILA) works dedicated to the following statements:

Our world wide VISION is to improve the quality of life among our lipoedema patients’ by offering them evidence based holistic treatment according to their individual needs.

Our Mission

We are dedicated to creating the best possible treatment for our lipoedema patients by collaborating in an international, diverse, inclusive, and multidisciplinary team approach which is based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes.

Our Values and Beliefs

  • Courage and Change
  • Care and Collaboration
  • Passion and Compassion
  • Diversity and Inclusion
  • Teamwork and Loyality

Our Goals

  • Increase knowledge about lipoedema by initiating and/or contributing to research programmes
  • Building the bridge between Healthcare Professionals and patients and valuing their knowledge and experience
  • Increase an understanding of lipoedema, and its holistic management by creating and/or contributing to the development of education programmes towards Healthcare Professionals and patients
  • Work closely with the International Lymphoedema Framework (ILF) and promote international collaboration
  • Provide a cross-cultural networking platform through an annual international event
  • Help the Health Care Industry understand the underlying needs of lipoedema patients and their healthcare professionals
  • Further promote and document best practice with the development of an international minimum dataset
  • Facilitate and/or contribute to better access to treatment for patients worldwide
  • Promote and support initiatives whose goals are to improve the regional/national/global management of lipoedema anywhere in the world.
  • Communicate evidence-based knowledge on lipoedema by implementing and promoting an international, not-for-profit publications strategy

What is the definition of lipoedema?

Click here to find out https://theila.net/

Renaming Lipoedema

The ILA is undergoing a process to rename lipoedema so oedema isn’t included.

Learn more https://theila.net/ressources/for-clinicians/renaming-process-of-the-term-lipoedema/lectures 

Resources

Patients

For Patients click here https://theila.net/ressources/for-patients

Healthcare

For Healthcare Professionals click here https://theila.net/ressources/for-clinicians

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