Primary lymphoedema and the skin

Research study by Jane Phillips (physiotherapist and lymphoedema therapist) investigating the skin in primary lymphoedema – before and after compression. Lymphoedema clinical assessment tools will be investigated for correlation to the changes measured.

Participants required

I am recruiting participants with primary lymphoedema from age 3 to 40 years old. As primary lymphoedema is not common, participants will be sought in three states in Australia, with measuring sites planned for Melbourne, Adelaide and Sydney. I will also need age and gender matched participants without lymphoedema, so plenty of scope for others to be involved! The study is underway in Melbourne, with Sydney planned in late June.

Why am I telling you this? What do I need?

National ethical approval has been granted with HREC/16/RCHM/136. The information sheet and poster advertising the study are available to prospective participants. If you work in a clinic which sees people with primary lymphoedema, it would be appreciated if you could display a poster or provide the information sheet regarding the study to people with primary lymphoedema who may be eligible or interested. Participants will need attend only once, for about three hours, for measures to be taken, before and after a session with pneumatic compression.

If you know people with primary lymphoedema and may be able to help spread the information regarding this study, please provide copies of the poster and participant information sheet (links below) or for further information, please contact me:

Jane Phillips
jane.phillips@flinders.edu.au or
0418 104 690

With thanks,

Jane Phillips
PhD Candidate Flinders University
Lymphoedema Physiotherapist